Get Distracted & Help Your Pain Tips from The Healing Redhead

Dealing with the trials of chronic pain can get old ... FAST! Those of us dealing with the effects of tumor pain, migraines, arthritis, fibromyalgia and other types of chronic pain can lead difficult lives. No doubt about that!

Stop a minute, right where you are. Relax your shoulders, shake your head and spine like a dog shaking off cold water. Tell that imperious voice in your head to be still.  

--Barbara Kingsolver

@Modern Dog Magazine via Pinterest

(Remember when you see a * GO to the bottom of the blog for more text/added details. The Healing Redhead: Sorry about the text, y'all. I think an evil gremlin lives under there. I tried every trick I know... except getting off Blogger. :( It wasn't intentional.) 

When your pain is on HIGH and your patience is finally on "E," you need ways to work the mind & body so that it feels even more energized when the pills kick in! If you don't take pills, distractions are even MORE IMPORTANT!  There's gotta be unusual, different and fun ways to distract yourself from the pain and we don't all have airline tickets to beautiful islands like every star and reality star on the planet! I've come up with The Healing Redhead's List of Distractions! But first, a quick interlude...below. 

A story. 

With our pain it's not like a cold or flu somebody gets once or twice a year. This is a continual cycle on-and-off through the week or it rides an unknowable flare schedule month to month or it's all about Al as in Roker & his weather patterns! I'm serious! 

A cold front came in last night and this morning I was contorted in my bed, heating pad on warm, and tried not to scare my Cavalier King Charles Spaniel puppy cuddled next to me. My body, like so many times before, felt like metal, not muscle. My hands, especially my left, felt as though they were burning, metal bending into different shapes. An early morning art installation and the artist is Pain.

 My knee, an entire other formation, was a raging fire. Where's a handsome fireman when you need one? Wait, he would have to be especially skilled to get that fire out! Maybe a hot neurosurgeon/firefighter... Do those exist? LOL! I should look that up! {wink!} 

My ears hurt and have for months and months. I still don't understand their language.  Consider the ears the teenagers of this unit, this mysterious unit of my aging body. Misbehaving, lawless. Oh, don't even get me started. 

Luckily, most everything got under control by mid-morning that day. Except the ears. It's all day-long, all night-long trying to understand what is wrong. Just when I think I got it -- like that elusive mathematics problem - another eruption, problem begins. Talk about perseverance. Ears don't quit. 

Days later I'm editing & they're hurting and not a 1 or 2 on the pain scale. A four at least. Then when I think I have a break from it all, calm and even not a bark or snore from the pooches, the symphony of aggravation erupts: tinnitus. I guess it is too much to ask to be the conductor of my own body.

###

Sometimes when we have pain and/or when we are waiting for pills to work, we need a distraction. Or 10. A little something to take our mind off the sizzling pain, the grueling headache, or the numbing body aches, right? It might help. Why not try, right? 

If we have something say, in the vault, ready to go, then when this happens tomorrow, the next day, or even next week you AND I will be ready. 

(Sidebar: This won't take away the pain itself. It merely distracts you while the pain pill(s) work(s) or the pain itself subsides. I am not a doctor, I am a suggestor-logist! Keep that in mind. I make suggestions to help my readers, that's it.*)

OK, are you ready?

Lip service
Next time you are at the store, indulge. Get a fun gloss or a retro-fun one, i.e. Bonnie Bell. Think about getting a nourishing body lotion, too. When the pain strikes do a mini makeover. Add gloss & lotion. Be easy on yourself. Add slowly, perhaps close your eyes, and say comforting healing thoughts/mantras: "It feels good to be well." "Beauty starts on the inside." "Wellness is an act of love." Perhaps you can follow up with a glass of water. Sip slowly. Add gloss when complete.

Sports fever
For guys & gals who love the action-packed field, there are plenty of live and best-loved games of the past ESPN plays and don't forget sports-related movies are always worth the popcorn and couch-potato time even when just hanging out and pain is level. What about: Hoosiers, Rudy, The Natural & The Sandlot, huh? Have a few queued on your phone or TV when The Pain hits. Coaches and players have great inspirational books, too.

After-school Special

I'm a TV child of the '80s-'90s and I spent many fun-filled hours watching clever, often silly shows like Punky Brewster, Cheers, Family Matters & Mel's Diner. Anyone, remember these oldies, but goodies? HA! OK, OK they're not THAT old! It's interesting to watch the childhood shows from an adult context and see if these oldies but goodies could make it today given scripts and jokes. Are they timeless or tacky or just plain wacky? Given the number of cable channels, YouTube, Netflix, amazon.com, etc. there's no reason not to check out M.A.S.H., Magnum P.I., The Mary Tyler Moore Show or Ally McBeal.* Saved By the Bell is still syndicated on some channels...But of course I haven't watched in... awhile! Nervous giggle. No really. It has been awhile. Oldie shows not only makes you smile but they bring back memories from a lighter, sillier time. Oh, youth. How I miss thee. Grab it back in 30-minute segments. The pain may or may not go away but you got a guaranteed blast from the past!*

Focus on Flowers 
My mom was sweet to surprise me with Valentine's Day/Birthday flowers. I am a February baby. I just loved looking at the bouquet. It sounds cheesy to say but the tulips were like a burst of cheeriness. Since I am unable to get out much this blast of color and vibrancy just filled me up each time I passed 'em. Ideas: You can post a photo of wildflowers on your computer, treat yourself to a potted plant or small bouquet, or think about gardening plans for spring and summer. Get this... I ended up buying a small bouquet of purple flowers after my birthday that have nearly lasted two weeks. I go near the flowers to get my pills AKA pain control. I try to remind myself to take a deep breath and soak in the view of the flowers. Each time I can remember this is like a mini-meditation. 

Be a Kid Again 
It can be as easy as rolling a few dice, spinning a plastic wheel or choosing a few playing cards. Sometimes distractions do involve a little effort but in the end the winner may be you! You can play Words with Friends on your iPad. You also can watch Jeopardy, Wheel of Fortune, and/or Family Feud and get a fun bet going among those watching nearby. If you have the energy and pain is not too much, Dominoes and Checkers are worth a round. Both were popular during my childhood and still fun today. I have fabulous memories playing those games. There's always GoFish and yet another goodie, the always fun, always exciting... MASH!* Gals, come on! You know it was "Mansion Apartment Shack House!" I know that will get a laugh!


Other Options
Dark chocolate Mmm... Sinful dark chocolate! Why NOT?
Walkin' - YOU better know how the song goes... or you better get off my blog! HA! Just kidding! A slow walk in the neighborhood or at a park might spark a funny story or let you be able to reflect in nature. It might certainly get your mind off PAIN!
CALM ohm... Tunes - Put some smooth tunes on your iPod or whatever current playlist technology you use. Sometimes it might not be calm tunes that allow you ease and comfort! Maybe it's rowdy '70s tunes or loud heavy-metal bands because it reflects how you feel on the inside. Whatever it is, cue it up for your next flare up and see if it helps!

NOW...

What Would YOU PUT Here? Please keep it G/PG, PLEASE. Thank you. 

 ©The Healing Redhead

*Please read my "Disclaimer." There's a tab directly above this post.

*Even episodes of Punky are available online and at stores! ;)
*OMG, remember Charles in Charge? Ha! That theme song! 

*You  thought I was going to say Old Maid. I wouldn't... DARE. Not at my age & predicament! ;) Ha! 

What a Pain! Does The Pain Scale Hurt or Help Us as Patients?

You know it. You've seen it. Pregnant ladies know it all too well. "Spoonies," too. People who have surgery definitely know it.

Smiley Face. SomewhatofaSmileyFace. Uh-Oh. #%+^&!!!

Dealing with pain is a tricky, tricky subject. It's tricky for the patient (each of us), the doctors, nurses, and other medical personnel caring for us, and our primary caregivers at home. Plus, we cannot forget friends, family, church friends, hobby group pals, etc.

Ask anyone on the street, rate your pain from 1 to 10 and by his or her response to that simple question, you will know a lot. Since my foray into the medical establishment at age 18 when I had my first MRI, cancer scare and subsequent surgery, I didn't think much of the 8 x 10 folded-over piece of paper tacked to the wall with scotch tape, threatening to fall with every swivel of a fan or rush of an air conditioner vent. Next to 0-1 is a smiley face and I imagine tickets to The Gorge, an outside concert venue a few hours west of Lewiston, Idaho,
where I was living at the time. The venue is ironically in George, Wash. (a giggle in itself). Current & iconic bands, single acts frequent the stage, a stage that merely rests on the
rolling Columbia Gorge steppe like somewhat an anomaly. Even though I always enjoyed going and may go again someday, I always kind of thought it weird to have such a wild and cosmic force out in the middle out of nowhere with the decibles pulsing along the river's tributaries, getting louder and louder, never settling down, unsettling the natural balance. The empty beer
can on what used to be animal tracks. Songs play & people party & have a grand time, me included, in a one of the most beautiful settings a concert could take place. But that's
before pain took me away.(More on that in posts to come...)

Chronic pain patients know what never settling down means in terms of pain. It can be never-ending, around the clock or sporadic, sharp, bursts of pain in certain areas (zap!) (pow!)
(zap!) (ZAP!)! It can mean interruptions in sleep or not sleeping at all.  With what I have, Neurofibromatosis, tumors rest on nerve endings throughout the body sometimes causing no pain, mild pain, all the way to severe, debilitating pain. Unfortunately, I know the latter from experience.

Back to the handy pain chart,

*1-2 is mild pain;
*3-4 is moderate pain;
*5-6 is severe pain;
*7-8 is very severe pain; and
*9-10 worst pain you ever experienced

REMEMBER?


There's some challenges patients, medical staff, and caregivers face day-to-day with this
chart as patients describe pain. One person's severe pain may be another's ice cream cone with sprinkles. OK, that is a little extreme, but it is hard to help each other when there are so
many kinds of people and so many pain thresholds. Then you have to deal with personality
issues (we will see this later) and whether someone tells the truth or not. Some truly need
medicine while others are looking to scam the system. Luckily, doctors and nurses don't just
use the pain scale like some parents do with a "sick" kid before a school day begins. Smart
parents and smart doctors back it up with diagnotics. :)

The pain chart can be a handy tool but I even find it hard at times when constantly asked "how
do you rate your pain?" A "four" two-years ago might not be a four today. Unless I am at 5-6 and going up fast, the numbers aren't terribly important to me. But then I get to 8, pain surges, and getting help becomes central to my life and overall well-being because it affects my depression heavily if I spend too much time on the higher end of the scale. But you have to remember my condition,from the outside, is unnotticeable. Unless I speak up, "7!" or "I'mreally hurting," people forget or move on to other patients. So, as a starting point and
conversation starter, the pain scale can be a good thing. But doctors and caregivers have to know how patients use the system because like each case each patient reacts to pain
differently.

There are times I keep my pain under wraps, i.e. public places or with friends, and my face
doesn't mirror what's happening on the inside, i.e. upset, hurting, etc. But I am truly feeling that inside. Yet, other times, I am totally that face and then some on the outside,
i.e. 5 p.m. at MD Anderson after a full day of tests and appointments. Or even gals, my time of the month is more of a challenge pain-wise, too. All right, I guess you say I'm aiming to
be the new poster gal for the pain chart. How's that for a claim to fame? :) Can you relate to
any of this? Has the pain chart helped you talk to your doctor and get your point across or has it been more of a hinderance, a game of pick-a-number?

A home health professional visited the house two to three days a week from June to November of
last year due to a post-op wound that was not healing correctly. It's a very long, detailed story with gruesome photographs, cleaning liquids, gauze, a buzzing machine AKA apparatus (officially called wound vac) that I had to wear for numerous weeks to help heal the post-op
error. Yes, I said, error, Mr. Surgeon. Long story short: I should've never taken said machine to the afternoon matinee. (I thought it would behave!) It became the worst kind of BFF making all kind of noise and ended up being ushered out of the theatre during a SJP* movie, even. Grr... It wasn't her career best, but I do like to see juicy parts of the movie & I swear that little machine had a brain! It was driving me crazy that day. I don't like cliches but I have to say it was a pain in the rear! Funny thing is, the wound vac was stage-left of that, my rear. So, it really was a pain in the backside! And that pain: Def: 5+! As you can see, humor gets me through!

We should laugh as much as we can when we are feeling good. Even at doctor's offices I use
bits of humor to diffuse situations. And there are times, I will admit, I can get a bit too serious when I'm in pain. My mom will agree. Well, to me, it's serious business. That's when I
gotta focus -- pray and/or mediate, if I can. Focus on an image or two that makes me happy like a scene in nature or my two furry "kids," Bridger and Sierra. That can sometimes make the
numbers on that pain scale go down or help me stay sane until something changes. But sometimes it is much, much harder. I'm not gonna lie. Living with a genetic disorder like
Neurofibromatosis*, is sometimes living minute to minute. The pain is really up there and even with help from doctors, nurses, family, friends, the person who helps you out is YOU! You are
strong enough. I am STRONG enough! It's not easy, though. Right now. As I type this, I am at a
4 and it's rising (pain in my arm, rising up through my neck on the left side -- Burning, aching, deep down). And as I do a quick edit, I am recovering from a three-day "I'm Out of It" zone with achiness, dizziness, pain, the whole works. I was completely unable to do anything.


When it comes... Fighting pain is about getting at that part of you that is deep down and
accessing it. Reach it and know it is there, be able to get at it. There
are times when you can't get at it and that is not only lonely but you hurt more. Also, you have to be able to feel the pain, all of it, imagine you are grabbing it all up, pulling it
from your body, visualize this... Grab that pain and hold it there away FROM your body as a symbol. Yes, this may seem silly, maybe, but it can work. One more item here, if you have
dealt with a lot with pain as I have, close your eyes: make sure there is a place inside you, somewhere, that pain has not got. Breathe in and out and hold yourself in that spot. Go there
to that spot as much as
you can. It can be a sanctuary from the pain. De-pain. Non-pain. Go there & be. It's important. Don't let pain get all of you. It may physically. But not our soul & our spirit.
So, the home health guy came to the house one day during that mini-month marathon and we got to discussing the pain chart. Every day, he asked me how I felt on a 1-10 scale. In a previous job as an ER nurse, he told me, he had a young patient on a gurney to which he asked the very same question. If I remember correctly, the guy may have been in his late teens. I don't remember exactly, forgive me. After not responding, the nurse, my home health guy, said, "0 means no pain at all & 10 is the worst pain you've ever experienced in your life...." The
patient sat up a little straighter and with a sly grin said, "Man, I ain't had the worst pain
in my life yet, bro'." I smiled. That was good one. I had to admit. Smart remark, yes. A heck of one. Then, I thought a bit more seriously, "God, I hope I am past that." That terrible, terrible pain. Yet, that pain still comes... In shocks & lightning bursts as if my body is more machine than flesh. I just hope I have the resources within me and around me to get me through it.

At age 34, I have sufficiently felt my share of 10s and even 10+ in my day from a needle
biopsy that went astray (age 18) to nerve pain in my leg that I simply could not keep under control (age 33) It's a horrible feeling, no, it's beyond horrible, to be in such agony and
not know when it will stop. Even as a writer, I find it tough to explain how I feel when I am in those moments of sheer pain and dread hoping, wishing, praying for the pain to ease up, to
stop. I want to scream out loud but I don't want to scare the people around me. But I want to urge God, the weather vain (dang pressure in the air all the time!), someone, something to
work on my & behalf. PLEASE. I try and stay as still as possible until it passes in the most comfortable position. Loud noises, for some reason, usually agitate the situation. This simply
could be a personal thing and the television's penchant for unruly commercials! I don't usually want to talk to anyone until the pain is back in the 6-7at least, but it depends on
each situation. Some 6-7 are tolerable. But then some aren't. I don't become "me" until I'm back at 4-5. Let's just say. For the record. Of course, I am always aiming for the round
smiley face at the left end with the 1/zero! Sounds pretty bad for a life's ambition but after you've been through the PET scans, the delicious barium shakes (sarcasm); long, longer,
longest waiting in the waiting room until the night cleaning crew shows up; funky cafeteria food and your mom's odd attraction to it; and mere affection for all hospital gift shops big
and small--as long as they have books&magaines, that smiley face means everything to you. It's your goal. Like tickets to your favorite concert venue. You want the :). It nearly becomes
like a badge once you cleared the rough passageway. Your finally home! :)

Do you have a lasting memory (good/bad) related to a pain scale?

Do you find pain scales helpful as a chronic pain patient?

------------
*Unless you count the unidentifiable item Mom retrieved from the cafe that was wrapped in
cellophane

*Sarah Jessica Parker, the one and only!

*I thought I had NF1 for the longest from age 18-34 and this year, at age 34, I got a blood
test that confirmed I had another form of NF, the newest variation called Schwannomatosis. I'll be talking more about it on my blog in the future. Info can be found; www.ctf.org/

 ©The Healing Redhead